Hey! Hope everyone has had a good Christmas? I'm going to be blogging every Wednesday from now on, just because if I do it to often I'll probably blab on about boring crap.
The build up to Christmas was great:) + I've managed to stay out of hospital! Still going strong as-well ) Hopefully I'll make it to the full 6 weeks this time.. If I do, I'll be due in on the 7th of January. On Christmas eve I went to Blackpool to see my mums partners mum, and we went for dinner at a café on the beach. I obviously being me didn't eat much, but it was fun. Then when we got back I went to do abit of last minute Christmas shopping. IT WAS AWFUL, so busy! I decided I needed to tire myself out(I can never sleep on Christmas eve due to excitement) so while we were walking round I didn't use the wheelchair, I had a few coughing fits on the way round but nothing some Salbutamol inhaler couldn't sort out;) Hopefully soon I'll have some new lungs and I'll be walking round them shopping centres ahead of everyone else!
By that night I was absolutely shattered, so had no problem sleeping.. In fact I didn't want to wake up at 8o'clock when my mum was to excited to wait any longer. When I eventually did get up, I opened all my presents. I got an iPod (Music iPod, not a touch), Speakers, Clothes, Money, Make-up, and loads of other stuff:) My Christmas dinner was SO good.
On boxing day I arranged to go and meet Ashley and Aanisaa, it was cold but worth it as I haven't seen any of them over the Christmas period. We went to watch Ash skate for abit then we went for Mcdonalds before he had to go home. Me and Aanisaa got bored so we went into Manchester for a few hours. It was Madness, their was literally 1500 people in each shop -_- but I got a nice jumper in the sales:D
Today I've been so tired from having 2 full on days before, I've just had a PJ day:)
hope you're all well! Oh! and follow me on twitter as-well! @lizbomb_xo
Hope everyone's well!
liz x
The people that keep me going!
First of all, I want to thank all of you for the feedback on my first blog! I got something like 400 views in the first 24 hours, which is AMAZING! I also got told it jerked a few tears... SORRRRRY!
Now I've told you all about myself, I'm gonna tell you about all the people close too me, as I can imagine I'll be mentioning these people in my blogs ALOT! I'll start with my friends and work my way too family:)
This girl just means so much to me. She's the best friend a girl could wish for, in a sense that when I'm in hospital, she always makes sure she comes and visits me (even though its 2 long bus journeys away). She runs around after me, if I'm having a coughing fit she can tell when its a bad one, and instantly runs for something for me too spit flem into. The best thing about being her friend, is we can not speak or see each other for ages, then when we do see each other its like we've never been apart! We've known each other for 11 years now, and have been best friends ever since. I can't even put into words how grateful I am for her.
Now I'll tell you abit about my guy-friends:
These guys are just, MINT! So much love for them.. I only started speaking to them properly in July, and I have a brother/sister bond with all of them Again I very rarely see these guys cause I've not been going out much lately (keeping myself as warm and as well as I can for Christmas!) but they always come and see me at my house when I can't get out, and they ALWAYS bring me Mcdonalds to the hospital when I'm in, and sometimes the bring be fudge. woo! They're like stars, I don't always see them but I KNOW they're always there. I had an amazing summer with these guys! Hopefully by next summer I will have my sparkly new lungs and have even more fun!:)
This girl makes my sides hurt, she makes me laugh too the point where I start choking on my laughter.. We have our ups and downs but its usually over stupid stuff, like which shoes we do and don't like or something.. so its easily sorted:) We go and meet celebrities together, cause I get too meet them privately.. CF & being in a wheelchair has too have some perks doesn't it!? ;) This photo by the way, was taken a few weeks ago at a photo shoot we went on together, SO MUCH FUN!
This is my sister Lucy.. she's my youngest, older sister.. if that makes sense? We fight like cat and dog, but I wind her up really cause I know she won't react ;) We argue so much but if anyone else tries to give either of us crap then the other one doesn't let the person live it down.. Like I said she's the youngest of my 3 older sisters. For some reason I don't have any updated pictures of me with them.. so I'll talk about them on another blog :)
I was going to do this a little longer.. but its 3.30am and I'm getting kind of tired so I'll mention 1 last person
My mum is amazing! Her and my "dad" separated about 4 years ago, and ever since she has done everything for me, drives too a from the hospital every day when I'm in, she's now quit her job so she can be my full time carer. She used to be able too do my IV's at home but now the hospital like too keep me in, as I'm on a new drug that can only be given via canula.. so that stinks. But me and my mum have silly arguments all the time, then within seconds we start laughing about it. I love you so much mum!
That's it for now anyway!:)
Liz xo
Now I've told you all about myself, I'm gonna tell you about all the people close too me, as I can imagine I'll be mentioning these people in my blogs ALOT! I'll start with my friends and work my way too family:)
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| Me and my best friend, Aanisaa. (when I was blonde) |
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| Aanisaa's art on the beach when we went to Cornwall! |
This girl just means so much to me. She's the best friend a girl could wish for, in a sense that when I'm in hospital, she always makes sure she comes and visits me (even though its 2 long bus journeys away). She runs around after me, if I'm having a coughing fit she can tell when its a bad one, and instantly runs for something for me too spit flem into. The best thing about being her friend, is we can not speak or see each other for ages, then when we do see each other its like we've never been apart! We've known each other for 11 years now, and have been best friends ever since. I can't even put into words how grateful I am for her.
Now I'll tell you abit about my guy-friends:
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| From left to right.. Me, Aanisaa, George, Kris, Sol, and the two in the back are Blinky and Matt. |
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| Me and Orianna. |
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| Lucy and Me.. She's 16. |
I was going to do this a little longer.. but its 3.30am and I'm getting kind of tired so I'll mention 1 last person
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| me and my amazing mummy |
That's it for now anyway!:)
Liz xo
Get to know me!
Hi, I'm Lizzie. I'm 13 years old and I have cystic fibrosis. I'm doing this blog because I'd rather get stuff off my chest and let people have a choice of reading it or not. so if you're not interested then you should probably click OFF this page now.
I'll start by telling you a little bit about me. I'm 13, I weigh 40kg and I'm about 5 ft 2. I was diagnosed with Cystic Fibrosis (CF) when I was only 8 months old after failing a sweat test. I have a 3 sisters, 1 full sister and 2 half sisters. Although I'm the only one with CF. Until I was about 9 years old CF never really effected me, I was on normal 3 monthly Iv's (intravenous antibiotics) via a portacath and was always gaining weight (I was the chubbiest and tallest off most of my friends in primary school). When I was 10, I lost alot of weight and my Lung function was slowly deteriorating, The hospital then gave me a Gastrostomy and I have a feed via pump over night, lasting 7 hours. When I was 11 Doctors spoke to my Mum (Rachel, but I call her Razza) about going to GOS(Great Ormand street) for a lung transplant assessment, I didn't know about this at the time, as it wasn't a definite thing, but then I turned 12 and things slowly got worse and worse, my lung functions dipped below 25% and I was spending most of my time off school in bed, or in hospital. NOT how a 12 year old should be living her life.. I then got too a stage where I couldn't be bothered too do my nebulisers, my thought were 'what's the point' 'it's not kept me well so it wont make me better' and other silly things like that. Then the nurses came too my house and told me about the transplant, the Pros and Cons, Side effects ect. They then told me Transplant was COMPLETELY my decision, and if I didn't want too go along with it then I didn't have too. Of course I went to London for the assessment and they told me I was poorly, but not poorly enough (they like too get you on the transplant list at the right time) so then I went back 3 months later. This is when they decided I was probably ready to go on the transplant list, and ready for some new lungs.. so naturally my head was everywhere, me and Mum never really spoke about it, and the hospital told us too go home, talk about it as a family, then call then in a few weeks with my decision of whether or not I wanted too go ahead with the transplant.
Weeks went by and I decided transplant was the right thing for me, I went back too London in March this year, and I was put on the transplant list on my 13th birthday (16th of March). This is when I decided I needed too get my act together, and get myself as well (and fat) as I can for my transplant. The difference in me now compared too this time last year is amazing. I'm now on 6 weekly Iv's and I've gained 9kg in weight, my lung function is steady at 27%... It isn't amazing but its steady, and I intend for it too stay that way. I have now been on the transplant list for 9 months and had 1 false alarm call. Hopefully my day will come, and I will be out next summer with my best friends having a mint time with my new Lungies!
Til' next time
Liz xo
I'll start by telling you a little bit about me. I'm 13, I weigh 40kg and I'm about 5 ft 2. I was diagnosed with Cystic Fibrosis (CF) when I was only 8 months old after failing a sweat test. I have a 3 sisters, 1 full sister and 2 half sisters. Although I'm the only one with CF. Until I was about 9 years old CF never really effected me, I was on normal 3 monthly Iv's (intravenous antibiotics) via a portacath and was always gaining weight (I was the chubbiest and tallest off most of my friends in primary school). When I was 10, I lost alot of weight and my Lung function was slowly deteriorating, The hospital then gave me a Gastrostomy and I have a feed via pump over night, lasting 7 hours. When I was 11 Doctors spoke to my Mum (Rachel, but I call her Razza) about going to GOS(Great Ormand street) for a lung transplant assessment, I didn't know about this at the time, as it wasn't a definite thing, but then I turned 12 and things slowly got worse and worse, my lung functions dipped below 25% and I was spending most of my time off school in bed, or in hospital. NOT how a 12 year old should be living her life.. I then got too a stage where I couldn't be bothered too do my nebulisers, my thought were 'what's the point' 'it's not kept me well so it wont make me better' and other silly things like that. Then the nurses came too my house and told me about the transplant, the Pros and Cons, Side effects ect. They then told me Transplant was COMPLETELY my decision, and if I didn't want too go along with it then I didn't have too. Of course I went to London for the assessment and they told me I was poorly, but not poorly enough (they like too get you on the transplant list at the right time) so then I went back 3 months later. This is when they decided I was probably ready to go on the transplant list, and ready for some new lungs.. so naturally my head was everywhere, me and Mum never really spoke about it, and the hospital told us too go home, talk about it as a family, then call then in a few weeks with my decision of whether or not I wanted too go ahead with the transplant.
Weeks went by and I decided transplant was the right thing for me, I went back too London in March this year, and I was put on the transplant list on my 13th birthday (16th of March). This is when I decided I needed too get my act together, and get myself as well (and fat) as I can for my transplant. The difference in me now compared too this time last year is amazing. I'm now on 6 weekly Iv's and I've gained 9kg in weight, my lung function is steady at 27%... It isn't amazing but its steady, and I intend for it too stay that way. I have now been on the transplant list for 9 months and had 1 false alarm call. Hopefully my day will come, and I will be out next summer with my best friends having a mint time with my new Lungies!
Til' next time
Liz xo
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